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Contact an authorized channel
A treating physician or current sponsor contact confirms whether the Registry is available locally.
The historic program accepted people with a confirmed Fabry disease diagnosis regardless of age, sex, or treatment status, subject to informed consent and local ethics requirements.
A treating physician or current sponsor contact confirms whether the Registry is available locally.
The clinical team verifies a confirmed Fabry disease diagnosis under current protocol criteria.
The participant reviews informed consent, authorization, privacy, and withdrawal information.
Authorized site staff enter relevant clinical observations and update them over time.