Historical reconstructionThis is not an official enrollment portal and does not collect health information.
Fabry Registry
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Contact & official sources

Use current authorized channels for enrollment or study questions.

This restored domain does not collect health information, enroll participants, or operate the Registry database. Current inquiries should go to the official study sponsor or your treating physician.

Current authoritative sources

Sanofi clinical-trial listing

Official current study overview for “Fabry Disease Registry & Pregnancy Sub-registry,” NCT00196742.

Open Sanofi study page

ClinicalTrials.gov

Public study record with current status, eligibility language, and sponsor information.

Open study record

Links open external websites. Verify their domain and privacy policies before sharing information.

Archived 2015 contact reference

Historical only—do not assume these details are current.
RegionArchived contact
Global & North AmericaGenzyme, Cambridge, Massachusetts
1-800-745-4447 ext. 15500
fabryregistry@genzyme.com
Europe, Middle East & AfricaGenzyme Europe BV, Naarden, Netherlands
+31-35-699-1232
Europe@fabryregistry.com
Latin AmericaGenzyme do Brasil Ltda., Rio de Janeiro
+55-21-2156-9950
Asia-PacificGenzyme Asia Pacific, Singapore
+65 62263836

Do not email health records to archived addresses.

Confirm current contacts through official Sanofi study channels and use secure, authorized systems for any clinical information.

Read privacy principles