No. This is an independent historical reconstruction of the public informational site. It is not operated, sponsored, or endorsed by Sanofi or Genzyme.
No. This site does not enroll patients, verify diagnoses, accept consent, or create Registry accounts. Use current official sponsor channels or speak with your treating physician.
Official study descriptions characterize it as strictly observational. Care and clinical assessments are determined by the treating physician.
Public study materials state that people of all ages and sexes with a confirmed diagnosis could be eligible, subject to consent, authorization, local requirements, and the current protocol.
Historical and current public descriptions state that the Registry follows participants irrespective of treatment status.
None of your health information. Do not submit diagnoses, genetic results, medication details, pregnancy information, medical documents, or identifiers.
The original credentialed portal and database are not recreated. A legitimate medical portal must be operated through the authorized sponsor and secure systems.
No. The schedule overview is educational. Actual assessment type and frequency must be determined by qualified clinicians using current guidance and individual needs.